Archive | October 2014

It’s All in the Name!

Acronyms…. they are everywhere!  Sometimes we know what they stand for and other times- not. a. clue.  My husband was reading a text the other day from one of our adult children.  With a frustrated look on his face he asked:  What does, “NVM,” mean?  “Never mind,” I replied smugly. Suddenly I was feeling quite tech-savvy.

Acronyms exist in my work world as an early childhood educator too:  NAEYC (National Association for the Education of Young Children), ACE (Adverse Childhood Experiences), ECERS (Early Childhood Environment Rating Scale), IFSP (Individual Family Service Plan), and literally hundreds- perhaps thousands- more.

Acronyms are also prominent in the cancer world. There’s BC (breast cancer :)), AI (aromatase inhibitors- doesn’t this sound like it gets rid of nasty odors?!), AND (axillary node dissection), DCIS (ductal carcinoma in situ), FNA (fine needle aspiration), ILC (Invasive Lobular Carcinoma), IDC (Invasive Ductal Carcinoma), HT (anti-hormone therapy), NED (no evidence of disease- my personal favorite), and ICBI  (“I can’t believe it”- uttered by many a woman when newly diagnosed.)

One day as I picked up my Tamoxifen bottle I thought it would be wonderful if Tamoxifen were actually an acronym, instead of a tiny white pill designed to protect me from the possibility of a recurrence.  So, I designed my own:

T = Today

A = All

M = My

O = Outrageous

X = Anxiety (bear with me- X is a tricky letter)

I =  Insecurity

F = Fearfulness

E = Ends

N = NOW

I wonder if they could print this on the label…..

 

But I’m a Black and White Girl…

When my beautiful 14-year-old niece was a little girl of about three or four, my sister,who is a rock-star mom, would ask, “Wouldn’t you like to go outside and play?”  Keep in mind they live in Georgia and the summers can be unbearably hot and humid.  My sweet niece would often reply, “I an inside girl, Momma.”   I thought that was just the cutest response.

After my surgery I waited for the pathology report to come back.  I believed that this report would “tell the tale.”  It would be a definitive, set-in-stone report that I could hang my hat on.  One evening the phone rang and our caller id told me that it was my surgeon.  I should insert here that it was 6 0’clock in the evening.  So, in my mind I thought this could be a very good sign or a very bad sign.  As it turns out, it was neither.  It was a “middle of the road” call.  Dr. Brenda felt very good about the path report and did not believe I would need chemo.  But, to be sure she wanted to send a sample of my tumor off to a lab for the ONCO DX test.  Because my tumor was estrogen and progesterone-positive, my lymph nodes were clear, and my breast cancer was considered “early stage,” I was a candidate for this test.

The ONCO DX would look at the expression of 21 genes in my tumor and provide me with a recurrence score:  low chance of recurrence, medium chance of recurrence, or a high chance of recurrence.  This is the kind of test you REALLY, REALLY want a low score on.  The lower the better.  After three weeks of waiting for the results- that’s 21 days- 21 long, arduous days, the results were in.  I was the proud owner of a low score.  I have never been so happy to score so low on a test in my life!  🙂

A few days later, I met with Dr. Brenda.  She again went over my recurrence score, and I promptly high-fived her.  She looked me in the eye and said that we both “needed to be on the same page.”  That while this was good news, in fact incredibly great news, this was no guarantee that I would not have a recurrence.  She then talked about calling in a prescription for Tamoxifen to protect me from this possibility.  My mind broke into a pseudo-sweat:  you mean this isn’t black and white- it’s GREY?!  Oh no this can’t be Dr. Brenda – you see “I’m a black and white girl.”  I always need to know the answer, research the best possible plan for- well for just about everything.

My husband and I decided to get a second opinion from a medical oncologist.  This doctor concurred with Dr. Brenda’s opinion.  Dr. Brenda had also told us that we could go to five different oncologists and potentially get five different opinions.  WHAT??!!  But, “I’m a black and white girl!”  I needed to hear the words:  “You have a low score.  This means your breast cancer is never, ever coming back.  No need for fear, anxiety, worry.  It’s black and white.  You are done with this FOREVER.”

Breast cancer helps you grow up.  It teaches you some tough lessons and this lesson was the most difficult of all.  There are no guarantees, no pat answers, no “always” or “never.”  So, this “black and white girl”  is learning to live with a brand new shade in life: GREY.  I am laying my “black and white” self down before my Lord and Savior and giving Him the canvas of my life.  He is helping me notice all the beautiful hues in the color grey.

And just as my sweet niece, Emily Caroline, is no longer “an inside girl,” I am no longer a “black and white girl” either…

 

What Do You See?

After the diagnosis and surgery I came home.  I came home to regroup, to heal, and to be cared for by family and friends.  I would like to tell you that I remained incredibly strong at all times.  But it was really difficult.  Waves of sadness and fear sometimes washed over me.  Some days I just couldn’t seem to shake the anxiety that a diagnosis of breast cancer brings.  But I couldn’t stay in that Pit and God wouldn’t let me.  I felt His Presence, His Touch, His Care all over me.  So how did I keep fear at bay?  In today’s post I will share one way:  What Do You See?

When fear, anxiety, and sadness came knocking and even when they weren’t quite at my doorstep yet, I did this…  I closed my eyes and visualized.  In my mind’s eye I saw Jesus’ hand reaching down to mine.  His Hand was strong.  I placed my hand in His and visualized Him pulling me out of a pit, a well so deep that I couldn’t touch the bottom.  I also visualized us walking together- usually along the beach or along a path surrounded by tall green grass and water.  I pictured myself lying down in the grass, feeling the breeze, and smelling the air.  When my thoughts seemed to be on a runaway track of “what ifs,” I saw Jesus holding me, hugging me.  That felt incredible.

I know if you are reading this, you may not have a relationship with Jesus.  You may not believe God or believe IN Him; but to push back the fear, the anxiety, the sadness you MUST see something.  You must visualize something that will pull you out of that Pit.  Choose what you see carefully- it has the power to carry you through.

Here is an excerpt from my journal from my summer of healing:

“The Pit”

Lord,

I seek Your Face, I hunger for Your Peace.

I thirst for Your Joy.

You reach down and pull me up from the Pit of my thoughts.

Take my hand, and don’t let go…

 

So… what do YOU see?

Did you just say that?

Looking back on this last year I can remember people not really knowing what to say to me.  They certainly meant well, and I am so grateful for all the love and positive comments I received.  But here is a list of the Top 10 Things Not to Say to Someone Newly Diagnosed with Breast Cancer:

10. What do you think caused it?  (If I knew that, we wouldn’t be having this conversation.)

9. How are you feeling? You look good. (I am not dying today and the shirt I am wearing has a stain on the front.  Did you miss that?)

8. How big is your tumor?  (Really- big enough- ok?)

7. You’re having both removed- wow- I could never do that.  (You’d be surprised what you’ll do when your life is threatened!)

6. God never gives you something bigger than you can handle.  (So not true- God didn’t “give me breast cancer.”  He allowed it.  And He wants me to be completely dependent on Him because He knows I can’t handle it without Him.)

5. My mother had breast cancer.  She died.  (Oh my- did you actually just say THAT to me?)

4. Are you getting nipples too?  (Wow- that seems just a tad on the personal side…..)

3. Is it in your lymph nodes?  (We don’t know that for sure yet and I’m trying not to hyper-focus on this uncertainty. )

2. Let me know if you need anything. (Hmmmmmmmmmmmmmm)

1. Your new breasts will never sag- they’ll always be perky! (I love the breasts God gave me.  I nursed my three babies with them, my husband loves them, and I’m totally okay with them sagging. 🙂

There are 31 days in October!

Wednesday, Oct. 15:  There are 31 days in October!!

October is a long month.  It starts out fresh and crisp with the promise of changing colors, scented fall candles, and toasty fireplaces.  But, when you are a breast cancer “thriver”, October is a month where you are bombarded by commercials, TV interviews, and billboards about…you guessed it- breast cancer.  Breast Cancer Awareness Month- really trust me I AM AWARE.  Ha   Even the pizza we ordered the other night had a pink ribbon on the lid the size of Mount Rushmore.

Now, do I appreciate the fundraising dollars aimed at research?  YES!   Do I understand that people are trying to be compassionate? You betcha!  Do I value the positive energy and well-wishers’ thoughts and prayers?  ABSOLUTELY!  Do I like the month of October? Not anymore…

I wait in line at Kroger and the cute little blonde with the perkiest breasts you’ve ever seen, asks me if I’d like to contribute to the fund for breast cancer?  Hmmmm… Gee, I feel like I’ve contributed quite a bit- I mean two breasts seems like a pretty hefty contribution to me.  But, I reach in my wallet and pull out a dollar.  I smile back at her- positive there is no way she could possibly know the reason MY breasts are so perky…

I get on my Facebook page only to find a site that I previously “liked,” is now listing how to prevent breast cancer.  Well… missed the boat on that one!

So, this is my second October when pink is not simply a color anymore.  Pink tells me I am not surviving – but thriving.  Pink tells me I am here today and that’s pretty damn good.  In the words of my surgeon as she held my hand before my life was about to change in unfathomable ways: “Pink- you’ll learn to love it or you’ll learn to hate it.  It’s a choice.”

I choose love.  Pink…it’s not just a color anymore. And October- hey, I’ve got this… only 16 more days to go.   🙂